A Guide to Supporting Youth through Transition

Families of Children with Special Healthcare Needs Push through a Pandemic Mountain

by Nanfi Lubogo
As the world abruptly shut down due to COVID-19, the reality of the biggest pandemic of our lifetime began to sink in. In the beginning, many treated the situation as a vacation- a “Coronacation,” they called it. As days seemed to get longer, boredom and endless Zoom conferences became the order of the day. Most people accepted the “new normal.” School districts implemented distance learning and the majority of families were able to adjust and deal with the inconveniences that arose from things we’d long taken for granted pre-COVID 19.
However, in some households in Connecticut and across the nation, isolation, anxiety, and uncertainty very quickly set in. Families of children and youth with special health-care needs had to figure out how to explain to their child that their school, activities, or programs were shut down. They could not see their grandparents and friends. Parents had to figure out how to teach their child as their special educators would, dealing with difficult behaviors, anxiety, and depression that were triggered by these sudden changes in their schedule. Parents were doing this while balancing the demands of work, either remotely or in person for those deemed “essential workers.”

(more…)

Building a Great Life

Building a Great Life Registration Book SERC FINAL 7-14 _Page_1

 

 

 

 

 

 

 

(more…)

Join CT KASA!

Join CT KASA!

KASA (Kids As Self Advocates) is a national, grassroots project created by young people with disabilities for young people with disabilities. CT KASA is open to anyone with a disability ages 13 to 26.

What CT KASA Can Do for YOU?

CT KASA participants learn how to advocate for themselves and take control over their own lives. CT KASA helps this happen by teaching young people about their rights and how to change the systems that affect their lives.

(more…)

KASA Kickoff Meeting!

Join us for the KASA (Kids As Self-Advocates) kickoff meeting. The meeting is open to young adults ages 13-26 and their parents. A light lunch will be served.

 

The KASA (Kids As Self-Advocates) program models leadership and the power of self-advocacy. KASA active in our schools, communities, families and places of employment, and PATH is very exciting to be bringing KASA back to Connecticut. We share our message with other youth who have disabilities or chronic health conditions, as well as with our friends and peers.

Our activities will include:

  • Representing the voice of youth living with disabilities and chronic health conditions by speaking to policy makers at public events and hearings
  • Educating our communities, including students, teachers and administrators at our schools; medical students and physicians; and federally funded cafe and agencies and state programs
  • Serving as advisors to the over 40,000 members of Family Voices across the country and organizations and agencies interested in promoting youth involvement and leadership

PATH Online Auction

 

Are you a Connecticut restaurant or business that would like to help PATH?

Our Parent Support program best known as The Listener Program; provides support services critical to many Connecticut families who live with the sometimes unimaginable situation of raising a child with developmental disabilities or special health care needs. The program provides training, one-to-one parent matches, follow-up services and an inspirational and informational newsletter at no cost to families. Other critical programs include navigation of complex healthcare programs and services, resource research and advocacy, support and training for parents dealing with difficult issues at school or state agencies. (Please visit www.pathct.org for a complete description of our programs).

(more…)

One in Five: Learn the Facts

 

Did you know that more than one in five families has at least one child with special health care needs (SHCN) – 23% of families? Families of children/youth with SHCN typically experience greater stress, struggling to meet the needs of their child in a maze of multiple and complex systems of care. Many families find that insurance is not adequate, care coordination is ineffective, and referrals are difficult.

Across the country families of SHCN get help from health care financing programs, community supports, and family-centered health care practices. Please help others learn more about the needs of children/youth with SHCN and how to help these families.

(more…)

Special Education Day at the Capitol

March 16, 2015:

SPECIAL EDUCATION DAY AT THE STATE CAPITOL

Join parents and families of special education students as we rally to support special education in Connecticut public schools!

Help us raise awareness about special education and its importance to the lives of thousands of children in Connecticut schools every day. Help us support special education and keep our system of special education fair and accessible to parents of special education students.

(more…)

Out & About with PATH – March 2015

kevin

 

 

 

 

Kevin Daly

The number of children diagnosed with Autism Spectrum Disorder has risen significantly over the last few decades.  In my role as Healthcare Information Specialist with PATH, much of my time is devoted to educating the public about Autism in children.  Our goal is to highlight the possible signs of Autism in children and to guide families of children who already have an Autism diagnosis toward care coordination and support.  I have a “road show” about Autism which consists of a Power Point presentation, handouts and a video about children with Autism (which can be viewed on our web site at www.pathct.org).

(more…)

Join CT KASA!

 
KASA (Kids As Self Advocates) is a national, grassroots project created by young people with disabilities for young people with disabilities. CT KASA is open to anyone with a disability ages 13 to 26.

(more…)



Archives by Month:


Archives by Subject:


Archives by Year:

  • 2020
  • 2019
  • 2018
  • 2017
  • 2016
  • 2015
  • 2014