PATH is gearing up for our third annual online auction, which will take place at the end of November, just in time to do your holiday shopping! We are actively seeking donations for the auction including gift baskets, gift certificates, products, or services.
Don’t have a business and still want to help? We’d gladly accept a gift basket donation of any kind for the auction. Popular baskets from last year include a pasta basket, a doggy basket, and a basket of homemade jams/jellies.
This auction is PATH’s main yearly fundraiser and we need your support. The money raised by this auction goes directly to the many programs of parent support, advocacy, and training offered by PATH to families of children with special needs. With major budget cuts in Connecticut, we need your help now more than ever.
If you have a something you’d like to donate to the auction, please contact Auction Coordinator Marni McNiff for details at email@example.com.
Parents of children with special needs may have so many doctors’ appointments that it can be easy to forget about preventive and wellness care. It can be especially difficult to focus on dental care. However, oral health is as important as physical health and, if untreated, oral health problems can result in serious complications.
It’s unfortunate that we hear about bullying so frequently in the media today. For parents who have children with special needs, it’s even more troubling when our kids are subjected to bullying; we may not be aware of these horrible actions until our child begins exhibiting the symptoms of bullying, which may include increased anxiety, anger, depression, and not eating or sleeping—just to name a few. Bullies often target people who are perceived to be different from others. The difference does not have to be obvious. While children with autism or kids who use wheelchairs may have more noticeable differences from others, children who have less distinguishable differences—such as a child who has a peanut or milk allergy—may also be bullied. Kids who have “theory of mind” challenges are particularly vulnerable to bullying. This arises because the child has difficulty understanding the bully’s intentions. Furthermore, autistic children have difficulty reading body language and picking up on social cues, which also increases their vulnerability.
Besides starting out a new school year, for many families this fall will be a time to get ready to launch a son or daughter into the next phase of life after high school. Think with your teen what they want to accomplish. The excitement and uncertainty your child may be feeling about these next steps may be mirrored in your own feelings of pride, concern, and maybe even relief. Growth and change affect everyone!
Listen to your son’s or daughter’s hopes and ambitions.
If you have recently learned that your child has a developmental delay or a disability (which may or may not be completely defined), this message may be for you. It is written from the personal perspective of a parent who has shared this experience and all that goes with it.
When parents learn about any difficulty or problem in their child’s development, this information comes as a tremendous blow. The day my child was diagnosed as having a disability, I was devastated—and so confused that I recall little else about those first days other than the heartbreak. Another parent described this event as a “black sack” being pulled down over her head, blocking her ability to hear, see, and think in normal ways. Another parent described the trauma as “having a knife stuck” in her heart. Perhaps these descriptions seem a bit dramatic, yet it has been my experience that they may not sufficiently describe the many emotions that flood parents’ minds and hearts when they receive any bad news about their child.
KASA (Kids As Self Advocates) is a national, grassroots project created by young people with disabilities for young people with disabilities. CT KASA is open to anyone with a disability ages 13 to 26.
What CT KASA Can Do for YOU?
CT KASA participants learn how to advocate for themselves and take control over their own lives. CT KASA helps this happen by teaching young people about their rights and how to change the systems that affect their lives.
Are you a Connecticut restaurant or business that would like to help PATH?
Our Parent Support program best known as The Listener Program; provides support services critical to many Connecticut families who live with the sometimes unimaginable situation of raising a child with developmental disabilities or special health care needs. The program provides training, one-to-one parent matches, follow-up services and an inspirational and informational newsletter at no cost to families. Other critical programs include navigation of complex healthcare programs and services, resource research and advocacy, support and training for parents dealing with difficult issues at school or state agencies. (Please visit www.pathct.org for a complete description of our programs).
Did you know that more than one in five families has at least one child with special health care needs (SHCN) – 23% of families? Families of children/youth with SHCN typically experience greater stress, struggling to meet the needs of their child in a maze of multiple and complex systems of care. Many families find that insurance is not adequate, care coordination is ineffective, and referrals are difficult.
Across the country families of SHCN get help from health care financing programs, community supports, and family-centered health care practices. Please help others learn more about the needs of children/youth with SHCN and how to help these families.