You Are Not Alone: For Parents When They Learn That Their Child Has a Disability

If you have recently learned that your child has a developmental delay or a disability (which may or may not be completely defined), this message may be for you. It is written from the personal perspective of a parent who has shared this experience and all that goes with it.

When parents learn about any difficulty or problem in their child’s development, this information comes as a tremendous blow. The day my child was diagnosed as having a disability, I was devastated—and so confused that I recall little else about those first days other than the heartbreak. Another parent described this event as a “black sack” being pulled down over her head, blocking her ability to hear, see, and think in normal ways. Another parent described the trauma as “having a knife stuck” in her heart. Perhaps these descriptions seem a bit dramatic, yet it has been my experience that they may not sufficiently describe the many emotions that flood parents’ minds and hearts when they receive any bad news about their child.

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“Life After High School Transitions Topics Training Series

Fairfield Public School’s Community Partnership Program (CCP) and Transition Services would like to invite you to come and listen to parents of former FPS students discuss their experiences with their student’s transition to and their ongoing relationships with private and state, adult services agencies and the supports they provide. The transition from school district supports and services to state and private agency services can take parents and students by surprise.

 

Parents are often unaware of the differences between those two worlds. This presentation will help you understand those differences, be more informed on how to negotiate with those agencies for the supports that you believe your student will need to be successful and how you might want to plan for your student before they leave the services of the school district.

 

These parents represent a cross-section of young adults with disabilities and their experience and information is extremely valuable, you really do not want to miss what they has to share.



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