Are you a Connecticut restaurant or business that would like to help PATH?
Our Parent Support program best known as The Listener Program; provides support services critical to many Connecticut families who live with the sometimes unimaginable situation of raising a child with developmental disabilities or special health care needs. The program provides training, one-to-one parent matches, follow-up services and an inspirational and informational newsletter at no cost to families. Other critical programs include navigation of complex healthcare programs and services, resource research and advocacy, support and training for parents dealing with difficult issues at school or state agencies. (Please visit www.pathct.org for a complete description of our programs).
Did you know that more than one in five families has at least one child with special health care needs (SHCN) – 23% of families? Families of children/youth with SHCN typically experience greater stress, struggling to meet the needs of their child in a maze of multiple and complex systems of care. Many families find that insurance is not adequate, care coordination is ineffective, and referrals are difficult.
Across the country families of SHCN get help from health care financing programs, community supports, and family-centered health care practices. Please help others learn more about the needs of children/youth with SHCN and how to help these families.
KASA (Kids As Self Advocates) is a national, grassroots project created by young people with disabilities for young people with disabilities. CT KASA is open to anyone with a disability ages 13 to 26.
We hope the stories featured in the report from around the country will illustrate the profound difference Family Voices at all levels makes in the lives of children and youth with special health care need and their families. We are grateful to the families for sharing their personal stories, challenges and joys – and to all of our supporters, members, contributors and leaders. Thank you! (more…)