Did you know that more than one in five families has at least one child with special health care needs (SHCN) – 23% of families? Families of children/youth with SHCN typically experience greater stress, struggling to meet the needs of their child in a maze of multiple and complex systems of care. Many families find that insurance is not adequate, care coordination is ineffective, and referrals are difficult.
Across the country families of SHCN get help from health care financing programs, community supports, and family-centered health care practices. Please help others learn more about the needs of children/youth with SHCN and how to help these families.