PATH’s Fourth Annual Online Auction

PATH is gearing up for our fourth annual online auction, which will take place at the end of November, just in time to do your holiday shopping! We are actively seeking donations for the auction including gift baskets, gift certificates, products, or services.

Don’t have a business and still want to help? We’d gladly accept a gift basket donation of any kind for the auction. Popular baskets from last year include a pasta basket, a doggy basket, and a basket of homemade jams/jellies.

This auction is PATH’s main yearly fundraiser and we need your support. The money raised by this auction goes directly to the many programs of parent support, advocacy, and training offered by PATH to families of children with special needs. With major budget cuts in Connecticut, we need your help now more than ever.

If you have a something you’d like to donate to the auction, please contact Auction Coordinator Marni McNiff for details at mmcniff@pathct.org.

 

 

Why Oral Health is Important for Children with Special Needs & How to Access It

 

 

Parents of children with special needs may have so many doctors’ appointments that it can be easy to forget about preventive and wellness care. It can be especially difficult to focus on dental care. However, oral health is as important as physical health and, if untreated, oral health problems can result in serious complications.

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Transitions—Growing Up and Away

Besides starting out a new school year, for many families this fall will be a time to get ready to launch a son or daughter into the next phase of life after high school. Think with your teen what they want to accomplish. The excitement and uncertainty your child may be feeling about these next steps may be mirrored in your own feelings of pride, concern, and maybe even relief. Growth and change affect everyone!

Listen to your son’s or daughter’s hopes and ambitions.

 

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You Are Not Alone: For Parents When They Learn That Their Child Has a Disability

If you have recently learned that your child has a developmental delay or a disability (which may or may not be completely defined), this message may be for you. It is written from the personal perspective of a parent who has shared this experience and all that goes with it.

When parents learn about any difficulty or problem in their child’s development, this information comes as a tremendous blow. The day my child was diagnosed as having a disability, I was devastated—and so confused that I recall little else about those first days other than the heartbreak. Another parent described this event as a “black sack” being pulled down over her head, blocking her ability to hear, see, and think in normal ways. Another parent described the trauma as “having a knife stuck” in her heart. Perhaps these descriptions seem a bit dramatic, yet it has been my experience that they may not sufficiently describe the many emotions that flood parents’ minds and hearts when they receive any bad news about their child.

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Barriers for Individuals with Disabilities in Getting Access to Healthcare

Even after children and adults with special needs have enrolled in a healthcare plan through a State or the Federal Marketplace, some are having difficulties accessing care.  In this blog, we summarize some of the obstacles and how they can be addressed.

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Join CT KASA!

Join CT KASA!

KASA (Kids As Self Advocates) is a national, grassroots project created by young people with disabilities for young people with disabilities. CT KASA is open to anyone with a disability ages 13 to 26.

What CT KASA Can Do for YOU?

CT KASA participants learn how to advocate for themselves and take control over their own lives. CT KASA helps this happen by teaching young people about their rights and how to change the systems that affect their lives.

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KASA Kickoff Meeting!

Join us for the KASA (Kids As Self-Advocates) kickoff meeting. The meeting is open to young adults ages 13-26 and their parents. A light lunch will be served.

 

The KASA (Kids As Self-Advocates) program models leadership and the power of self-advocacy. KASA active in our schools, communities, families and places of employment, and PATH is very exciting to be bringing KASA back to Connecticut. We share our message with other youth who have disabilities or chronic health conditions, as well as with our friends and peers.

Our activities will include:

  • Representing the voice of youth living with disabilities and chronic health conditions by speaking to policy makers at public events and hearings
  • Educating our communities, including students, teachers and administrators at our schools; medical students and physicians; and federally funded cafe and agencies and state programs
  • Serving as advisors to the over 40,000 members of Family Voices across the country and organizations and agencies interested in promoting youth involvement and leadership

PATH Online Auction

 

Are you a Connecticut restaurant or business that would like to help PATH?

Our Parent Support program best known as The Listener Program; provides support services critical to many Connecticut families who live with the sometimes unimaginable situation of raising a child with developmental disabilities or special health care needs. The program provides training, one-to-one parent matches, follow-up services and an inspirational and informational newsletter at no cost to families. Other critical programs include navigation of complex healthcare programs and services, resource research and advocacy, support and training for parents dealing with difficult issues at school or state agencies. (Please visit www.pathct.org for a complete description of our programs).

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One in Five: Learn the Facts

 

Did you know that more than one in five families has at least one child with special health care needs (SHCN) – 23% of families? Families of children/youth with SHCN typically experience greater stress, struggling to meet the needs of their child in a maze of multiple and complex systems of care. Many families find that insurance is not adequate, care coordination is ineffective, and referrals are difficult.

Across the country families of SHCN get help from health care financing programs, community supports, and family-centered health care practices. Please help others learn more about the needs of children/youth with SHCN and how to help these families.

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Special Education Day at the Capitol

March 16, 2015:

SPECIAL EDUCATION DAY AT THE STATE CAPITOL

Join parents and families of special education students as we rally to support special education in Connecticut public schools!

Help us raise awareness about special education and its importance to the lives of thousands of children in Connecticut schools every day. Help us support special education and keep our system of special education fair and accessible to parents of special education students.

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