WHO WE ARE, WHAT WE DO.
Among the many services PATH/FVCT offers to families of children with special health care needs are:
- Services and information to moms on bed-rest, parents of premature babies, or babies in the NICU (Neonatology Intensive Care Unit)
- Support to families who have children with special health care needs (including: Autism, Down Syndrome, Cystic Fibrosis, Sickle Cell, ADHD, LD)
- Information and assistance about applying for Birth to 3 services, DDS, SSI, Section 8 housing, insurance coverage, transition to adulthood (in regards to assisted living, transitioning from pediatric medical care into adult medicine).
- Training on cultural and linguistic competence: helping both professionals and parents learn the values and principles of cultural and linguistic competence. Our ASD training also covers considering culture in Autism Screening and promoting the early identification of ASD across culturally and linguistically diverse populations.
- Early Signs of Autism and the “Top 10 things every child with Autism would like you to know” (video).
- Support Training for Adults with Cystic Fibrosis and Sickle Cell: PATH/FVCT has modified our Parent Support training to suit youth and adults dealing with Cystic Fibrosis and Sickle Cell disorder.
- Assistance finding medical specialists and support in their area.
- Help parents prepare to be their own best advocate for their child with special needs. This entails helping parents to understand their child’s Individualized Education Plan (IEP) and preparing them to advocate at a Planning and Placement Team meeting (PPT).
- Through our federally Family to Family Health Information Center, PATH/FVCT provides help navigating all aspects of healthcare. Through this program we help families to:
- Increase understanding and utilization of appropriate health resources for their Children & Youth with Special Health Care Needs (CYSHCN) and their families.
- Expand the mechanism and means through which families are receiving health resources and information by: disseminating information on health resources and providing education and training for families and the professionals that serve them.
- Build the leadership of families of CYSHCN and their capacity to improve health policies and practices in CT by providing training, advocacy and opportunities through which they can serve and not only offer their expertise as parents but also expand their knowledge and become better advocates for their children.
EDUCATIONAL SUPPORT AND ADVOCACY
In addition to the above supports and services, PATH/FVCT can assist families with educational navigation and support. As parents know and understand dealing with the educational system in CT can be a daunting, overwhelming and time consuming experience and while PATH/FVCT staff is available to help, from time to time we may have to refer you to an advocate outside of PATH/FVCT. Please take a moment to review and understand the criteria for support below:
- All referrals that come into PATH/FVCT will be handled on a case by case basis.
- In exchange for educational support for 1 year, parents will be asked to participate in PATH/FVCT’s membership drive which requires annual dues of $50. They will be required to complete PATH/FVCT’s Parent Support Training (Listener Program) and participate in at least 4 leadership trainings per year (most of which will be webinars). Details will be provided at the time of referral and parents will be asked to sign an agreement before start of services.
- In the event that PATH/FVCT is not able to provide the above services, parents will be referred to an outside educational advocate that we work closely with. Please note that this service will be based on a sliding scale fee and handled on case by case basis. This is a special agreement offered to families referred by PATH/FVCT. The advocate will meet with all families for a one time free consultation and then accept cases according to need.
*It is important to note that no family will be left behind and PATH/FVCT will make every effort to support any family that calls us but our overall objective will be to educate and empower each family to become better advocates for their children.
SOCIAL MEDIA ADVOCACY
General page: facebook.com/PATHCT
Closed Parent Support Page: facebook.com/groups/PATHParentsupport/
Closed Sibling Support Page: facebook.com/groups/PATHsiblingsupport/
www.pathct.org ∙ 1-800-399-7284. Email: firstname.lastname@example.org