Happy Holidays from PATH

Posted by: Marni McNiff Tags: There is no tags | Categories: Uncategorized

December
18

Warmest Wishes for a wonderful holiday.

As we celebrate this Holiday Season, we pause to remember our friends from near and far who have lost loved ones this year! It is our hope that 2016 will bring comfort, joy and fulfillment to all of you and your families.

2015 has been a remarkable year for PATH/FVCT and we thank you for being a part of it and would love to share just a few highlights:

  • PATH/FVCT was awarded the Family to Family Health Information Center (F2FHIC) Grant for another 2 years and have assisted many families in the navigation of health care services including understanding health insurance and making sure they get connected to Access Health CT (CT’s Health Insurance Exchange). Other activities include;  A Sibling Support Group Private Facebook page for siblings of CYSHCN ages 13-26, where they can network, planning stages of an Adult Sibling Support Group. PATH/FVCT also spearheads a committee created from the Community of Practice concept, which is called; Family Mentoring and Leadership Committee. This committee is run by PATH/FV parents and participates are parents, self advocates and state agencies. The goal of this group is to disseminate information at a local and statewide level. The committee is in the process of training families to become Mentors to assist families on the LifeCourse Concept.
  • PATH staff have also been active on several state and national board’s including representation on: CT’s State Innovation Model’s Consumer Advisory Board; The National Center on Birth Defects and Developmental Disabilities; The National Emergency Services Advisory Council; The CT Early Hearing Detection and Intervention Taskforce and various Special Education PTO’s across CT.  Click here for national articles: Sheri Romblad NCBDD 
  • The re-launch of CT KASA (Kids as Self Advocates): With funding made possible from the CT Council on Developmental Disabilities we have recruited 15 youth with disabilities and have hosted monthly meetings at the UCEDD in Farmington.  CT KASA youth have been active in many statewide activities including participating in a youth summit at the October “Building a Great Life” conference that was a celebration of the anniversaries of IDEA (Individuals with Disabilities Education Act) and ADA (Americans with Disabilities Act). The youth have been busy setting up an organizational structure for CT KASA, developing a brochure, responding to requests for youth participation and networking with other youth in CT and nationally. Stay tuned via our website: www.pathct.org for future activities.

CT KASA YOUTH OUT AND ABOUT

CT KASA youth KASA 4 BAL KASA 3

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