WHAT’S IN A NAME?

  • PATH was formed in 1986 as Parents Available to Help
  • Incorporated in 1988.
  • 2003 PATH became Parent to Parent of CT Parents Available to Help, Inc. We merged with Lower Fairfield County Parent to Parent.
  • 2008 PATH Parent to Parent of CT became an Alliance Member of National Parent to Parent USA.
  • 2009 PATH became a State Affiliate Organization of the National Family Voices Organization and became known as PATH Parent to Parent/Family Voices of CT (PATH/FVCT).
  • 2011 PATH/FV CT received their first Federal Grant: Family to Family Health Information Center

The heart of PATH/FVCT is our Support Parent Training (known as Listener Training) and one to one matching services through which we provide one to one parent support with a trained veteran parent who has “been there” and understands what the family is going through. Parents are referred by social workers, doctors, Birth to Three Providers or other parents and can call our 1-800 Toll-free number. Once the call is received and the need determined, PATH/FVCT conducts research into our database to find the best match and the parent is called back and the matching process begins. As the State Affiliate Organization of Parent to Parent USA (P2P USA), PATH/FVCT follows their evidence based best practices which require that matching services are made within 24-48hrs and that the family is contacted if a match cannot be made within that time frame. For more info on P2P USA please go to:

p2pusalogo

http://www.p2pusa.org/p2pusa/SitePages/p2p-faq.aspx

Among the many services PATH/FVCT offers to families of children with special health care needs are:

  • Services and information to moms on bed-rest, parents of premature babies, or babies in the NICU (Neonatology Intensive Care Unit)
  • Support to families who have children with special health care needs (including: Autism, Down Syndrome, Cystic Fibrosis, Sickle Cell, ADHD, LD)
  • Information about and assistance applying for Birth to 3 services
  • Information and resources concerning DDS, SSI, housing, insurance coverage, transition to adulthood (in regards to assisted living, pediatric practice to adult primary) Training on Cultural Competence and Early Signs of Autism and What Every Child With Autism Would Like You To Know (video) Listener Training for Adults with Cystic Fibrosis and Sickle Cell
  • Assistance finding specialists and support in their area
  • Help parents prepare to be their own best advocate for their special needs child including help understanding your child’s Individualized Education Program (IEP) and preparing to advocate at your child’s Planning and Placement Team meeting (PPT).
  • Through our federally Family to Family Health Information Center, PATH/FVCT provides help navigating all aspects of healthcare. Through this program we help families to:

o Increase understanding and utilization of appropriate health resources for their Children & Youth with Special Health Care Needs (CYSHCN) and their families.

o Expand the mechanism and means through which families are receiving health resources and information by: disseminating information on health resources and providing education and training for families and the professionals that serve them.

o Build the leadership of families of CYSHCN and their capacity to improve health policies and practices in CT by providing training, advocacy and opportunities through which they can serve and not only offer their expertise as parents but also expand their knowledge and become better advocates for their children.