FOR IMMEDIATE RELEASE
PATH Parent to Parent/Family Voices of CT named “Champion for Coverage” by U.S. Department of Health and Human Services
North Haven, CT – PATH Parent to Parent/Family Voices of CT (PATH/FVCT) is honored to be recognized as a Champion for Coverage by U.S. Department of Health and Human Services (HHS). As a Champion, we have volunteered to help uninsured Americans learn more about the Health Insurance Marketplace.
What is it like to live with a brother who doesn’t have autism? I wouldn’t know. My name is Ashlynn. My older brother, Patrick, has autism. Asperger’s to be exact. Asperger’s is a mild form of autism. Patrick’s autism is so unnoticeable that if you were to meet him. you probably would not know that he has it. Asperger’s has pros and cons. It gives my brother a high IQ, the ability to play 23 instruments, and an amazingly creative mind. One of the drawbacks of Asperger’s is that my brother can be a rigid rule follower.
We hope the stories featured in the report from around the country will illustrate the profound difference Family Voices at all levels makes in the lives of children and youth with special health care need and their families. We are grateful to the families for sharing their personal stories, challenges and joys – and to all of our supporters, members, contributors and leaders. Thank you! (more…)
One of the first things you learn as a parent of a child with special needs is that you need to advocate for your child. As much as the school districts and professionals are there to help you along the way, you-the parent, know your child better than anyone else. You are just as an important member of that PPT team as the special education teacher, the speech pathologist, and the physical therapist, etc.
There are steps you can take to be a good advocate for your child in and out of the school setting:
As much as we love our children, caring for a special needs child can often feel like a full-time job with no breaks. It’s important that caregivers take steps to keep themselves fresh. It’s not selfish to take a few minutes to yourself. In fact, by following these tips you can avoid depression, exhaustion, and possible health problems that may occur when you spend all your time caring for someone else and neglect taking care of yourself.